[Text Reads: “Badass Chronic Pain Tips / Society wants to make you believe that mobility aids are associated with weakness, but what all those ableist fucks who say shit that makes you feel like crap don’t realize is that you’re one hardcore, pissed-off cripple who is already at their maximum capacity of dealing with daily ableist bullshit—with a built-in blunt force weapon or mechanism to run them the fuck over with.”]
You don’t need to take their bullshit. Beat up ableists with your cane.
My walker is killer. Never mind my fist o’ ring splints.
Elizabeth Smart: Abstinence Education Teaches Rape Victims They’re Worthless, Dirty, And Filthy -
fuckyeahsexeducation:TW: Sexual abuseElizabeth Smart became a household name after she was kidnapped from her home in Salt Lake City, UT at the age of 14 and held in captivity for nine months. She was forced into a polygamous marriage, tethered to a metal cable, and raped daily until she was rescued from her captors nine months later. Smart was recovered while she and her kidnappers were walking down a suburban street, leading many Americans who followed her story on the national news to wonder:Why didn’t she just run away as soon as she was brought outside?
Speaking to an audience at Johns Hopkins about issues of human trafficking and sexual violence, Smart recently offered an answer to that question. She explained that some human trafficking victims don’t run away because they feel worthless after being raped, particularly if they have been raised in conservative cultures that push abstinence-only education and emphasize sexual purity:
Smart said she “felt so dirty and so filthy” after she was raped by her captor, and she understands why someone wouldn’t run “because of that alone.”
Smart spoke at a Johns Hopkins human trafficking forum, saying she was raised in a religious household and recalled a school teacher who spoke once about abstinence and compared sex to chewing gum.
“I thought, ‘Oh, my gosh, I’m that chewed up piece of gum, nobody re-chews a piece of gum, you throw it away.’ And that’s how easy it is to feel like you know longer have worth, you know longer have value,” Smart said. “Why would it even be worth screaming out? Why would it even make a difference if you are rescued? Your life still has no value.”
Now in her mid-twenties, Smart runs a foundation to help educate children about sexual crimes. She now believes that children should grow up learning that “you will always have value and nothing can change that.”
Social psychologists and sexual abuse counselors agree that comprehensive sex education can help prevent sexual crimes. Teaching children about their bodies gives them the tools to describe acts of abuse without feeling as embarrassed or uncomfortable, and it also helps elevate their self-confidence and sense of bodily autonomy. A shame-based approach to genitalia and sexuality, on the other hand, sends kids the message that they can’t discuss or ask questions about any of those issues.
(Source: progressivehumanity, via tinytruant)
Everybody around you is struggling with not living up to their own expectations in some way, especially the people who seem the happiest and most successful. It’s not the same struggle, but they’re struggling nonetheless. That’s the only real “normal”.
May is Ehlers-Danlos Awareness Month. Spread the word.
We got mad tricks, yo.
(Here, lemme get you an ice pack)
Getting being Young & Sick. -
The only people who understand how hard it is to be young, and chronically ill, are YOUNG AND CHRONICALLY ILL. Older middle-aged people who become ill, have experienced life. They have experienced their prime. They have had the opportunity to…
Not really though, because there is this thing called time which propels us forward regardless of our ability status. I remember, very very well in fact, what it was like to be young and sick. They call it chronically ill for a reason. This shit does not pass. It changes, but it doesn’t just get up and run off one day. It suuuuuuucks.
But guys! Get this: when you get to your late twenties all of your able bodied friends will be freaking out about having their dreams seemingly evaporate** and you will be sitting on the sofa going “yup, I remember this”. By that point, you will have adjusted. You will have had some good days and some terrible ones and some where it truly seemed like you might actually kick it this time, but there will also be moments so big and cool you can’t believe you’re not watching it on screen. You’ll have a new set of dreams for yourself. There are going to be horrible personal medical dramas and obstacles, but you’ll know that you’re not alone in feeling like this. It’ll get better, even when you don’t.
Every time there’s something new and scary on my chart, I feel young and sick. It’s the terror of unstoppable change. Until someone actually throws me in a Tardis, I’ve got to adjust.
**edited to add: For clarification, I don’t think everybody experiences what we experience. Nor do I think everybody’s dreams go away or that (able-bodied or otherwise) people don’t achieve incredible things. I do believe that nobody actually experiences life in their prime, which is to say we don’t know what that is, but in our minds it’s usually gone or somewhere off in the distant future. Our “prime” is an abstract, highly subjective concept. You’re the only one who can judge it, and it will always shift.
(Source: , via chronically-something)
(Source: sundasill, via tinytruant)
On Yoga -
My doctor: Don’t do yoga, it will fuck your shit up.
Everyone Else on this planet: Do yoga, it cures everything. What do you mean you can’t? You’re addicted to big pharma! You don’t want to get better! You are a terrible person sending out…
When I talk about Ehlers Danlos to anybody new, they almost immediately bring up yoga. Do I do it, am I amazing at it, will it cure me, etc. I smile and tell them: ”NO, Yoga breaks my body because it increases flexibility. I’m too loose and my body can’t hold their forms correctly so it makes me more prone to injury. However, Pilates is great, under the right circumstances. The smaller, controlled range of motion and emphasis on form help strengthen the muscles around my joints. Even then, it’s certain schools of pilates with the right instructors that work and a tight PT regimen to unfuck my body on the days when even though everyone is doing everything according to plan, my connective tissue decides to play tricks on us.
But Yoga sounds really fun. I wear the pants all the time.”
I may be stuck inside on this gorgeous day, but at least I’ve got the Princess of Power to egg me on.
Kasia Struss at Givenchy Haute Couture F/W 2009/10 Backstage
DO IT NOW: Guide to Proper Bra Fit and Measuring -
Hi guys I’m obsessed with this shit lately because I don’t want anyone to have unhappy, unsupported boobs like I did. Even if you think your boobs and bras are fine, try it. It will make a big difference in comfort, support, and shape, even if you have small boobs or big boobs. A proper fitting…
Reblogging for support.
self care permission slip
(Source: wanderingempress, via chronically-something)
Always when I’ve got a to-do list a mile long, too. This is when I switch over to the ‘B’ list: things that can get done from bed. Paperwork that can be filled out or filed online, phone calls I’ve been putting off, or teaching my cat how to get a cup of coffee from the kitchen to the bedroom without opposable thumbs.
EHLERS DANLOS ZEBRA
TOP: FRIENDS IN BED ALL DAY FROM HANGOVER
BOTTOM: IN BED ALL DAY FROM PAIN