this is what our tax dollars pay for
(Source: ruinlion, via jillypeppa)
anja rubik by luigi & daniele + lango for exhibition magazine
Full gear. #ehlersdanlos #ringsplints #silverringsplints
Does anyone know where you can get ring splints???
The joints in my fingers are so weak and floppy that it’s easy to partially dislocate them without really trying, even with doing physio to try and stabilise my range of motion and mobility. Trying out some kind of ring splint really might be a good idea for me, especially on bad days, or months, like this one has been.
Help a spoonie sister out?
I saw a tumblr post a while back advertising this website: http://www.silverringsplint.com/
They’re expensive but supposedly very good.
I got my ring splints by getting a prescription from my rheumatologist, then going to a hand therapist who knew how to both fit me for them properly and also bill my insurance. The splints pictured above were then ordered through silverringsplint.com, who were also great about returning a set of splints that didn’t fit once they arrived. I had to go to a jewelry store and get the wrist chain on my thumb splint cut down to size, which was free. I was extremely lucky, in that my insurance covered them. Part of this was definitely working with someone who knew how to bill them correctly. Insurance companies are pains in the arse.
EDSRINGSPLINTS on Etsy is a great place to get a set of splints, too. You don’t need a prescription to order from them. They recently ran a promotion for rare disease day. Check it out here: https://www.etsy.com/listing/174729672/get-your-rare-disease-day-splint?ref=shop_home_feat_4
If you want to try out splints without the commitment, plastic ones are available on Amazon. Here’s an example: http://www.amazon.com/Oval-Splints-Individual-Ring-Size/dp/B000ITFYV8/
I’m sure this is already somewhere on this site but I haven’t seen it and love it too much not to share.
[image: Tweet by Deaf actress Marlee Matlin, @MarleeMatlin, which reads “Only in Hollywood is my interpreter counted as a guest for a pre-Oscar party saying I can’t bring anyone else. Wise up. It’s called Acess”]
Only thing that needs to be added is it is certainly not only Hollywood with this complete lack of regard for access
(Source: morerobots, via tinytruant)
i sat on my brother and broke him
Anonymous asked: What are the signs of emotional abuse?
Abusive Expectations - Makes impossible demands, requires constant attention, and constantly criticizes.
Aggressing - Name calling, accusing, blames, threatens or gives orders, and often disguised as a judgmental “I know best” or “helping” attitude.
Constant Chaos - Deliberately starts arguments with you or others. May treat you well in front of others, but changes when you’re alone.
Rejecting - Refusing to acknowledge a person’s value, worth or presence. Communicating that he or she is useless or inferior or devaluing his or her thoughts and feelings.
Denying - Denies personal needs (especially when need is greatest) with the intent of causing hurt or as punishment. Uses silent treatment as punishment. Denies certain events happened or things that were said. Denies your perceptions, memory and sanity by disallowing any viewpoints other than their own which causes self-doubt, confusion, and loss of self-esteem.
Degrading - Any behavior that diminishes the identity, worth or dignity of the person such as: name-calling, mocking, teasing, insulting, ridiculing,
Emotional Blackmail - Uses guilt, compassion, or fear to get what he or she wants.
Terrorizing - Inducing intense fear or terror in a person, by threats or coercion.
Invalidation - Attempts to distort your perception of the world by refusing to acknowledge your personal reality. Says that your emotions and perceptions aren’t real and shouldn’t be trusted.
Isolating - Reducing or restricting freedom and normal contact with others.
Corrupting - Convincing a person to accept and engage in illegal activities.
Exploiting - Using a person for advantage or profit.
Minimizing - A less extreme form of denial that trivializes something you’ve expressed as unimportant or inconsequential.
Unpredictable Responses - Gets angry and upset in a situation that would normally not warrant a response. You walk around on eggshells to avoid any unnecessary drama over innocent comments you make. Drastic mood swings and outbursts.
Gaslighting -A form of psychological abuse involving the manipulation of situations or events that cause a person to be confused or to doubt his perceptions and memories. Gaslighting causes victims to constantly second-guess themselves and wonder if they’re losing their minds.
The fact that you’re struggling doesn’t make you a burden. It doesn’t make you unloveable or undesirable or undeserving of care. It doesn’t make you too much or too sensitive or too needy. It makes you human. Everyone struggles. Everyone has a difficult time coping, and at times, we all fall apart. During these times, we aren’t always easy to be around — and that’s okay. No one is easy to be around one hundred percent of the time. Yes, you may sometimes be unpleasant or difficult. And yes, you may sometimes do or say things that make the people around you feel helpless or sad. But those things aren’t all of who you are and they certainly don’t discount your worth as a human being. The truth is that you can be struggling and still be loved. You can be difficult and still be cared for. You can be less than perfect, and still be deserving of compassion and kindness. — Daniell Koepke (via internal-acceptance-movement)
Ping Pong leveled up @Machineprojectartjamz with @pissflaps (at Machine Project)